Patient advocacy

Parents with their baby

Power to the patient

By teaming up with patient advocacy groups we strive to support patients and their families in two ways: connecting them to resources and increasing awareness of genetic testing in diagnosing rare disease.

Parents with their baby

Working toward a better world

GeneDx has collaborated with advocacy organizations in various capacities to support their missions – whether by providing testing and research collaborations or by drawing greater awareness to the organization.

Here are a few examples of our successes in the past few years:

Mother laughing with teenage son who has a disability

Through the Odyssey and iHope philanthropic programs, GeneDx has provided no-charge exome sequencing and whole genome sequencing to patients who meet clinical criteria and who don’t otherwise have access to this testing. Since 2017, we have helped nearly 300 patients by providing them access to testing; potentially ending their diagnostic journey so time can be spent on their care.

Learn more

Young boy with Duchenne Muscular Dystrophy

In 2021, GeneDx began our collaboration with CureDuchenne, a leading Duchenne muscular dystrophy advocacy and venture philanthropy organization. Through this alliance, CureDuchenne and GeneDx are providing genomic sequencing test results, for consented patients, to the DMD research community.

We would love to design a collaboration with your organization that makes a positive and lasting impact for patients and their families.


Connecting advocates to patients in need

Would you like your organization to be included on relevant GeneDx reports?
Complete the form below.


Select all genes that apply
Select all conditions that apply

GeneDx supports driving awareness of advocacy resources for diagnosed patients and their families. GeneDx invites advocacy organizations to complete this form to have their information included on diagnostic reports for conditions they support.