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Share your story

Thank you for your interest in sharing your story with GeneDx. Your experience has the power to bring hope, connection, and understanding to others.

Complete the form below to tell us a little about yourself and your journey. A member of our Patient Advocacy & Engagement team will contact you after reviewing your submission.

Meet Carlotta

“My advice to parents would be to try to get that information and push for exome sequencing as early as possible because the more information you have earlier, the more you’re potentially able to do and help your child’s long-term outcome.”—Andrea, Carlotta's mother

Meet Estella

“My youngest child, Estella, was diagnosed at eight months old with an ultra-rare neurological disease called alternating hemiplegia of childhood. The power of a genetic diagnosis brought more than answers to my family; it brought a sliver of hope and potential for the future.”—Lacey

Science that serves people

We’re scientists, but we’re also parents, siblings, and caregivers who understand how powerful an answer can be.

Whether you’re a healthcare provider, patient, family member, or biopharma partner, GeneDx is here to support your next step.

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