Key Takeaways:
- GeneDx is partnering with Start Genetic to support Genetic Testing Action Day and raise awareness about the value of genetic testing.
- Genetic testing can help identify the cause of unexplained medical conditions, inform care decisions, and connect families with resources and research opportunities.
- Greater awareness can help more individuals and families access genetic testing earlier in their diagnostic journey.
- Everyone can participate by starting the conversation, sharing resources, and supporting the campaign on July 25.
Joining the Genetic Testing Action Day movement
Together, we can help more patients and families access answers through genetic testing—unlocking understanding, community, and a way forward.
GeneDx is proud to announce our partnership with Start Genetic in support of the second annual Genetic Testing Action Day, taking place on July 25, 2026.
Genetic Testing Action Day is an annual day of awareness and a call to action: to start the conversation about genetic testing. This growing global campaign empowers individuals, families, advocacy organizations, healthcare professionals, researchers, and industry leaders to amplify the value of genetic testing and help more families access the answers they need.
GeneDx is honored to join this Start Genetic movement. For more than two decades, we have been focused on helping clinicians and families uncover the genetic answers that can guide care and improve outcomes. Our participation reflects a shared belief with Start Genetic: that awareness and access to genetic testing are essential to helping more patients receive accurate diagnoses and appropriate care.
"As a genetic counselor, I've seen how a genetic diagnosis can transform uncertainty into understanding. That's why I'm so proud of our partnership with Start Genetic. Together, we're working to educate and empower families, so they know genetic testing is an option and feel confident starting the conversation. Every person deserves answers, and every family deserves the opportunity to understand whether genetic testing may be right for them."
Why genetic testing awareness matters
As genetic medicine continues to transform healthcare, timely genetic testing has never been more important. For individuals with global developmental delays and intellectual disabilities, epilepsy, autism, cerebral palsy and many other unexplained medical concerns, genetic testing can help identify an underlying cause, inform medical management and treatment, connect families to support communities, and open doors to research and clinical trial opportunities.
Too many individuals and families who could benefit from genetic testing never receive it—or even know how to ask for it. On average, families wait five years for a rare disease diagnosis, seeing multiple specialists, undergoing repeated tests, and living with uncertainty before the underlying cause of symptoms is identified.
Increasing awareness is a critical step toward changing that reality. When patients, families, and healthcare providers recognize when genetic testing may be appropriate, more people can access testing earlier and benefit from the answers it can provide.
That's why awareness matters.
A genetic diagnosis may help individuals and families:
- Understand the underlying cause of a condition
- Make more informed treatment and care decisions
- Access specialized resources and support communities
- Participate in research and clinical trials
- Better understand recurrence risk and support future family planning
At GeneDx, we have seen firsthand how obtaining a genetic diagnosis can transform years of uncertainty into understanding and provide a clearer path forward for patients and caregivers.
How to Participate
This July 25, join GeneDx and Start Genetic in helping more people access the answers they deserve. Whether you're a patient, caregiver, advocate, healthcare provider, researcher, or industry partner, you can help start the conversation about genetic testing by:
- Talking with your healthcare provider about whether genetic testing may be right for you or your family.
- Sharing your story on social media using #StartGenetic and #GeneticTesting to inspire others to start the conversation.
- Downloading and sharing free educational resources with your community to help raise awareness about the value of genetic testing.
- Engaging with the Start Genetic campaign by following, sharing, and amplifying campaign content throughout Genetic Testing Action Day.
- LinkedIn: Start Genetic
Looking Ahead
At GeneDx, we believe every person deserves the opportunity to understand whether genetic testing may be right for them. That's why we're proud to partner with Start Genetic—to educate, empower, and inspire conversations that help more people access genetic testing and the answers it can provide.
This Genetic Testing Action Day, we invite you to join us in starting the conversation. Together, we can help more people access answers sooner and unlock understanding, community, and a way forward.
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